More and... well more.

So, Dr. Barton saw me the following thursday (this was a while ago) and decided this was all good. He was mostly right, and I've been on the accutaine since then. Now, I'm on about a half a million drugs, all of which I'm on.

Then again my dog did just have puppies! The at home at least!

MKay... quick update

So Dr. Gilbert told me to take accutane, temodar, and avastin. The first two because they'd help the tumor and the last on because it'll help the cyst. That started last saturday. Monday I woke up with a huge headache so i went into the er for the first time in years. The problem was the accutane, we think, so I'm stopping that until thursday, when I think I'll have an appt with Dr, Barton. In the meantime, I have plenty of narcotics!

The Plan... now at least

Our plan is to go down to see Dr. Gilbert (neuro oncology) and Dr. Lang (neurosurgery) for the next few days at MD Anderson. We'll see if they have trials that sound legitimate to me.

psssst!!

I don't know if anybody noticed... but it's a happy b-day for my counter.

after dr b

Hmmm... So it turns out that Dr. B didn't really know anything at all, but then again, neither does anybody in the rest of the world. (If you think I'm being facetious, I'm not.) The tumor IS bigger; it IS pressing on the other half of my brain; and it ISN'T giving most of the effects you'd expect. (This is part of the reason I'm so confused... or is that confusion a portion of my symptoms?!!?!?! -- AH!)

Okay. So Dr. B did say the most effective things he knew at this point were his knowledge of the people doing trials. I have run out of things to do here at Loyola. He told us about neurooncologist Dr. VDAGERereaaASDggher at Duke (I'll try to get that later) and Dr. Gilder/ Gilber/ Glildablater neurooncologist at MD Anderson as the range comes into play. Meaning, one tends to take on more aggressive trials and one tends to take on less aggressive trials.

So, sometime in the next few weeks, we'll go see them. And some brain surgeons to see if they want to take a whack at my head.

That's where we are now. Yup.

m