Wednesday, April 1, 2009

after dr b

Hmmm... So it turns out that Dr. B didn't really know anything at all, but then again, neither does anybody in the rest of the world. (If you think I'm being facetious, I'm not.) The tumor IS bigger; it IS pressing on the other half of my brain; and it ISN'T giving most of the effects you'd expect. (This is part of the reason I'm so confused... or is that confusion a portion of my symptoms?!!?!?! -- AH!)

Okay. So Dr. B did say the most effective things he knew at this point were his knowledge of the people doing trials. I have run out of things to do here at Loyola. He told us about neurooncologist Dr. VDAGERereaaASDggher at Duke (I'll try to get that later) and Dr. Gilder/ Gilber/ Glildablater neurooncologist at MD Anderson as the range comes into play. Meaning, one tends to take on more aggressive trials and one tends to take on less aggressive trials.

So, sometime in the next few weeks, we'll go see them. And some brain surgeons to see if they want to take a whack at my head.

That's where we are now. Yup.

m

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